Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
What a beautiful blog of a beautiful little angel! I read your whole story and had a hard time reading through my tears. Thank you so much for sharing your story! May you find comfort and peace through the atonement of our loving Savior!
very cool that everyone could participate. It is so cool that you guys just do things the way you want.
ReplyDeleteYes, I agree, it was very sweet and the spirit was there. You guys are awesome.
ReplyDeleteWhat a beautiful blog of a beautiful little angel! I read your whole story and had a hard time reading through my tears. Thank you so much for sharing your story! May you find comfort and peace through the atonement of our loving Savior!
ReplyDeleteWow! Mariah is so grown up and beautiful! What a neat way of doing the burial. I like the Maori way!
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