Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
Oh Behka! How do you make such cute cute kiddos! Jaya will treasure this video for the rest of her life! You are by far the most amazing mom ever! I just love you!!!!!
so so cute. I love it.
ReplyDeleteOh Behka! How do you make such cute cute kiddos! Jaya will treasure this video for the rest of her life! You are by far the most amazing mom ever! I just love you!!!!!
ReplyDeleteso cute. Brought instant smiles to mine and the girls faces. And of course they want to watch it again.
ReplyDeleteShe is so dang cute
ReplyDeleteVery sweet video. Thanks for sharing your children.
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