Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
This one is awesome!!! Wish I'd have been there for it. Looks like they just got more and more fun to make.
ReplyDeleteThese have to be my absolute favorite. What a sweetheart. Thanks so much for sharing!
ReplyDeleteI am just loving this little monkey! So so cute.
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