Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
I'm thinking of you, and praying too. Jonah is such an inspiration.----Love, Debbi Malone
ReplyDeleteYour family is so beautiful. I'm thinking of you all often.
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