Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
Monday, February 14, 2011
Hot Stuff!
Here's Jonah wishing everyone lots of love this Valentine's Day.
He is such a cutie! Give him a kiss for me! I love his little grin.
ReplyDeleteHappy Valentines day sweet boy!!
ReplyDeleteOh Behka! What a sweetheart. I hope Jonah enjoyed his first Valentine's Day. I wish I had those curls. What a lucky little boy.
ReplyDeleteSuch a handsome boy! We love you guys.
ReplyDeletewe love you too Jonah! Hang in there buddy. He definitely is HOTT STUFF!
ReplyDeleteI'm so glad you got to see him smile. What a handsome boy. And I just adore the hair.
ReplyDelete