Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
Oh my goodness! I just LOVE you guys! I LOVE all those amazingly fun pictures! What a fun memories those will be! And what an awesome model Jonah is! :)
I love all the photos! I would have never thunk it. You guys are awesome. We love you all very very much. Sorry we couldn't be around more in the last hours, but you know our hearts were there.
These photos will help the kids remember their brother in a happy fun way. Good job mom!
I am amazed at all of the creativity and many poses that Jonah was in. He has done more in his lifetime than I have in mine. He looks so great in all of them and what an amazing missionary he is and will be.
that is hilarious. and very creative.
ReplyDeleteOh my goodness! I just LOVE you guys! I LOVE all those amazingly fun pictures! What a fun memories those will be! And what an awesome model Jonah is! :)
ReplyDeleteThanks for the smiles! Looks like he had fun, too! :)
ReplyDeleteThat was a fun day. Thanks for letting me be there. Go Jonah! Go!
ReplyDeleteWhat a great day! Absolutely the cutest pictures ever.
ReplyDeleteI love all the photos! I would have never thunk it. You guys are awesome. We love you all very very much. Sorry we couldn't be around more in the last hours, but you know our hearts were there.
ReplyDeleteThese photos will help the kids remember their brother in a happy fun way. Good job mom!
Life is precious and so are all of you!
You guys are great. So creative and so fun. Our prayers are with you.
ReplyDeleteI am amazed at all of the creativity and many poses that Jonah was in. He has done more in his lifetime than I have in mine. He looks so great in all of them and what an amazing missionary he is and will be.
ReplyDeleteThese pictures are wonderful. How creative you guys are. So adorable. thanks for sharing these.
ReplyDeleteBy far the missionary attire is my favorite...what a great missionary he has been in this life...thank you Jonah for strengthening my testimony!
ReplyDeleteThis is my favorite. This is why he came. What a great missionary.
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