It is the Maori way. It is beautiful.
Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
Friday, February 25, 2011
Friday, February 18, 2011
Obituary
Jonah Dare White 12/06/10 -02/16/11
I am Jonah Dare. I lived 10 weeks and learned to be grateful for the kindness of others. I want to thank all of the cute girls who brought cookies and cupcakes, the beautiful ladies who crocheted and quilted snuggly blankets, the culinary skill of thoughtful Utah county moms, the boys in the hood for hosting BYU games, and ESPN for creating the new “Jimmer” segment (BTW my mom can beat you in PIG), the coaches and Bantam basketball league for last second game winning shots, the people at IHC for tolerable torture, the funny old man with a $100 bill, the many kissin’ cousins, aunties, and uncles, the hope from Hope Kids, my big sister for sharing her cereal and the basketball ladies for dislodging it, the OT’s from Kids Who Count who persuaded me to SMILE, the RS for EVERYTHING and the Hip Hop artists that make my mom “shake it” with me in her arms. Mostly, I thank Heavenly Father for my chance at life with a beautiful mom, a lucky father, 4 loving sisters, and 3 brothers who are my heroes (especially Tai Nui!). Funeral services will be Feb. 23, at 950 S. 1700 E., Springville at 11 am, viewing at 10 am.
I am Jonah Dare. I lived 10 weeks and learned to be grateful for the kindness of others. I want to thank all of the cute girls who brought cookies and cupcakes, the beautiful ladies who crocheted and quilted snuggly blankets, the culinary skill of thoughtful Utah county moms, the boys in the hood for hosting BYU games, and ESPN for creating the new “Jimmer” segment (BTW my mom can beat you in PIG), the coaches and Bantam basketball league for last second game winning shots, the people at IHC for tolerable torture, the funny old man with a $100 bill, the many kissin’ cousins, aunties, and uncles, the hope from Hope Kids, my big sister for sharing her cereal and the basketball ladies for dislodging it, the OT’s from Kids Who Count who persuaded me to SMILE, the RS for EVERYTHING and the Hip Hop artists that make my mom “shake it” with me in her arms. Mostly, I thank Heavenly Father for my chance at life with a beautiful mom, a lucky father, 4 loving sisters, and 3 brothers who are my heroes (especially Tai Nui!). Funeral services will be Feb. 23, at 950 S. 1700 E., Springville at 11 am, viewing at 10 am.
Wednesday, February 16, 2011
Jonah Triumphs
Our sweet Jonah passed away this evening. It has been amazing to have a little piece of heaven in our home for as long as we did.
We are feeling the love and prayers from so many of you-thank you so much.
Please pray for our children in their grieving. Thanks.
We are feeling the love and prayers from so many of you-thank you so much.
Please pray for our children in their grieving. Thanks.
Lifetime in a Day
Today while we were borrowing sand from the jar of time, we decided to do things with Jonah we always wished he could in this lifetime-things he won't get to do. We hope you enjoy the pictures as much as we enjoyed creating them. It started out as "What is our crazy mom doing?" And ended with lots of help and creativity from the kids, dad, and even extended family-Maren, Ricky, Rick, Grampa, and Ezra. Thanks everyone, for rolling with it and making a stressful time sweet.
Here's Jonah, living a lifetime in a day.
Here's Jonah, living a lifetime in a day.
Tuesday, February 15, 2011
Jonah Fighting
What a difference a day can make. Jonah has pneumonia. The doctors aren't optimistic that he will recover-even with hospitalization and antibiotics-neither am I. He is battling. The hardest thing a mother ever has to do is watch helplessly as her child battles. He is home with us and we are watching. And loving. And singing. And crying. And praying. And waiting. And trusting. And remembering. And smiling.
Monday, February 14, 2011
Hot Stuff!
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