Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
Sunday, December 5, 2010
Why Megaminds?
A couple weeks ago my dear friend, Ylfe, sent a care package in honor of Jonah. For family night, we opened the package and shared the sweet gifts for our new baby with our kids. We were talking about the upcoming birth and what they could expect. We were explaining how he would look different so when they went to visit him in the NICU they would be prepared for seeing him the first time. We explained that he would have a very big head, bigger than our other special babies have had. Tai Nui piped up with "He's going to be a 'Megamind'!" We all had a good laugh about that. So baby Jonah already has a nickname. Megamind!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment