Jonah was born with Walker-Warburg syndrome, a rare form of Muscular Dystrophy that includes having very little brain tissue. Most babies with this syndrome live anywhere from a few hours to a few months. We don't know how long we will have Jonah, but we will LOVE HIM every second and trust God's timing. Welcome to the sweet moments of Jonah's life.
Subscribe to:
Post Comments (Atom)
Sounds like Jonah is doing very well and it also sounds like he had a nice Christmas with his loving family.
ReplyDeleteWow. What a precious picture!! Glad to hear that the surgery went well...you are in our prayers!
ReplyDeleteI love all these pictures. I love your Christmas nativity! And all the other pictures too. Glad to hear the surgery went well. Baby Jonah is the sweetest. We love you guys. Merry Christmas and Happy New Year!
ReplyDeleteThanks for sharing Jonah's sweet pictures and updates. We're thankful Jonah is strong and are happy for the family memories you are making. We will keep you in our prayers.
ReplyDelete